Posted on 27/3/2017

Cystic Fibrosis Foundation of Israel

Fondation Dora is helping the Cystic Fibrosis Foundation of Israel (CFFI)
to develop a new project.

CFFI, financially and emotionally, supports Israel's 630 CF patients (half of them are children) and their families during complex treatment. Cystic fibrosis is a genetic, progressive, incurable multi-system disease.
Analysis of results show that despite receiving the same clinical treatments and home care recommendations, non-Jewish patients' results are less positive than Jewish patients'. CFFI assert that lack of awareness of the disease in general, and cultural & linguistic gaps, are the most significant factors in the higher mortality rate.

 

The goals of this project are to increase awareness of the non-Jewish population to Cystic fibrosis in general, guide patients and families in caring for people living with the disease and provide adjusted psycho-social and financial support. CFFI aims to increase home care by 20% and social worker visits by 15,; perform at least 3,000 individual physiotherapy sessions to 50 kids and provide each family with personal, written materials to guide at-home care. CFFI will add Arabic speaking social workers, physiotherapists and a pharmacist to the staffs of its six clinics around the country which will enable to serve many more people who previously were unaware of those services or were not able to access them due to language barriers between them and CFFI staff.